Empowering the Authentic Voice

The experience of caregiving for a loved one living with a diagnosis of dementia can impact a family’s emotional, physical, and financial well-being. Katie is able to speak to sensitive and complex topics with empathy, practical advice and the voice of lived experience to connect with a wide audience.

Podcasts are a great way for Katie to connect with a wide audience of family caregivers, healthcare providers and advocates in the rare disease and dementia space. Katie has been honored to lend her voice to the following podcast series:

Katie was honored to be featured on the Remember Me 1st Anniversary episode where she was able to share a letter to her late husband, Mike.

Publications & Media Mentions

MassBio – The Massachusetts Biotech Council features Katie’s story of loss after her husband’s battle with the rare disease, Frontotemporal Degeneration, in the educational campaign, Cures for the Commonwealth. 5/19/2022

AFTD -The Association for Frontotemporal Degeneration spotlight’s Katie’s interview on the Ask a Matchmaker podcast to discuss dating and romantic partnerships while caregiving and navigating the experience of grief and loss. 1/31/2022

MassBio – The Massachusetts Biotech Council featured Katie on the MassBio Town Hall: Perspectives of the Caregiver with Paul Kidwell. 10/6/2020

MassBio – The Massachusetts Biotech Council featured Katie on the cover of the Summer 2020 MassBio Insider Magazine to highlight the 2020 Rare Disease Day event, of which Katie emceed for 5 years. 7/1/2020

Butler Hospital – The Butler Hospital Memory and Aging Program spotlighted Katie as a featured caregiver in the Summer 2020 issue of Memory Matters. 7/1/2020

Butler Hospital – “Katie Brandt Provides 5 Critical Tips for Dementia Caregiving” 7/1/2020

AFTD – The Association for Frontotemporal Degeneration announces Katie’s position as Co-Chair of the National Alzheimer’s Project Act (NAPA) Advisory Council for Alzheimer’s Research, Care and Services with Alan Levy, MD of Emory University. 8/19/2019

Being Patient – Katie is interviewed for a live Facebook event by Deborah Kan, founder of Being Patient, a site dedicated to the latest news in Alzheimer’s Disease and brain health research. 6/27/2019

NPR – In an article on Shots Health News from NPR To Manage Dementia Well, Start With the Caregivers Katie Brandt is interviewed about her work with caregivers for loved ones with Frontotemporal Dementia, utilizing the DICE method for non-pharmacological behavior management. 9/15/2018

FTD PSA – Katie was proud to partner with AFTD and the Discovery Channel to produce one PSA in a series of PSAs to promote a greater awareness for FTD and related dementias. 9/23/2017

The Boston Globe – In an article in Globe South written by Paul Kandarian, Katie is interviewed about her inspiration to launch Love Is Out There and spearhead fundraising efforts for The Frontotemporal Disorders Unit at MGH.  The article highlights Katie’s role as co-chairwoman of the upcoming Rare Disease Day at the Massachusetts State House on Monday, February 29, 2016.  12/20/2015

MassGeneral Magazine – FALL/WINTER 2015 Issue.  MassGeneral Magazine is a publication from the Massachusetts General Hospital Development Office.  My story was chosen as the cover story to highlight the power of community fundraising.  I wrote the article and photographer Joshua Touster spent an afternoon with Noah and I at home to capture the images used in the story.  This is one of the best pieces put together about my work and I am so proud that MGH chose our story to share in such an important way.  I know that so many people have a  story to share.  I hope that by reading my story it will inspire them to action, to believe that the power of one can make a difference for all.

Wicked Local – An article highlighting The FTD Unit Inaugural Gala & Art Show and Liz Elefante, the gala’s planning committee co-chair and former executive assistant to Dr. Brad Dickerson. 10/29/2015.

Foster’s Daily Democrat – An article announcing the recipient of the 2015 Lux In Tenebris Award from Saint Thomas Aquinas High School, Katie Brandt.  Katie’s husband Mike was a teacher at STA for 2 years.  Katie and Noah attended the graduation ceremony to accept this prestigious honor for significant and enduring contributions to humanity.  5/28/2015

Rural Intelligence – In an article that discusses a new documentary that chronicles one woman’s journey with FTD, Looks Like Laury, Sounds Like Laury, reporter Nichole Dupont interviews Katie to gain a wider perspective on the experience of living with FTD.   4/20/2015

Project Remind – A non profit dedicated to raising funds for FTD research.  This organization was founded by Alexandra (Sparks) Rautiola who lost her dad, Kenny, to FTD.  Alexandra inspired a group of friends to raise funds and awareness for FTD, making an impact for families tomorrow.  2/23/15

The Boston Globe – The Brandt Family and FTD were featured in an article written by Bella English on the eve of Boston’s Rare Disease Day event at the Massachusetts State House. 2/22/2015

The Brockton Enterprise – Love Is Out There and the January 31st Comedy for a Cause fundraiser at The Alley Theatre were featured in an article written by Michele Morgan Bolton. 1/25/2015

Powerful Patient Podcast – Katie was interviewed for this podcast to talk about customer centric medical information and the importance of participation in research for the the rare disease community.  7/24/2014

The Health4Brands & HAVAS Worldwide video This 3 minute video provides highlights of Boston’s 2014 Rare Disease Day event at the Massachusetts State House where Katie was a featured speaker.

AFTD Rare Disease Day Insert, Washington Post – March 23, 2013

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