Media
Delivering Guidance that Illuminates the Power of the Authentic Voice
Podcasts
Connecting with a wide audience of healthcare providers, family caregivers, and advocates in the rare disease and dementia community.
Ask a Matchmaker
Caregiving Challenges and Dating Realities: A Deep Dive
​
Remember Me FTD
​
Dementia Untangled
​
Med Learning Group
DETECT—Distinguishing and Managing Early-Stage Alzheimer’s Disease: Leveraging Interdisciplinary Collaboration for Prompt Identification and Optimal Patient Management (Podcast 2)
Alzheimer's Association: Speaking of Alzheimer's
Frontotemporal Dementia: A Husband's Diagnosis at 29
Bob’s Last Marathon
​
Defy Dementia
Take Good Care - Brain Health for Caregivers
​
Powerful Patient
Publications, Presentations
& Media
2024
Hear Katie's remarks as emcee and co-chair of the 9th annual gala to benefit the MGH Frontotemporal Disorders Unit.
​
Article:
Establishing data elements and exchange standards to support long COVID healthcare and research
Reference: Gay Dolin, Himali Saitwal, Karen Bertodatti, Savanah Mueller, Arlene S Bierman, Jerry Suls, Katie Brandt, Djibril S Camara, Stephanie Leppry, Emma Jones, Evelyn Gallego, Dave Carlson, Jenna Norton, Establishing data elements and exchange standards to support long COVID healthcare and research, JAMIA Open, Volume 7, Issue 3, October 2024, ooae095, https://doi.org/10.1093/jamiaopen/ooae095
​
Blog Post: The Roon 5
The Roon 5 Highlights some of the inspirational creators on Roon. In this post you will hear from advocate and caregiver Katie Brandt. You can watch all of her Roon answers here to learn more about her experience as a family caregiver and a dementia care expert.
​
The Boston Herald Op-Ed:
Brandt: Improving Care and Support for Dementia Caregivers
Katie provides an op-ed for the Boston Herald to highlight the need for family caregiver support ahead of her presentation at the Boston stop of the Alzheimer's Foundation of America Educating America Tour.
​
Ask A Matchmaker Podcast Video: Caregiving Challenges and Dating Realities: A Deep Dive with Katie Brandt
​
Katie talks with host Maria Avgitidis on this heartfelt episode of the Ask a Matchmaker podcast to discuss the journey of balancing marriage, motherhood, a professional career and the immense responsibilities of caregiving.
​
Dementia in Middle Age: Updates on Frontotemporal Dementia & Early Onset Alzheimer’s Disease
​
See Katie talk with Dr. Brad Dickerson, Director, MGH Frontotemporal Disorders Unit, on this episode of Talk With the Doctor Series presented by the Massachusetts Alzheimer's Disease Research Center (MADRC) to learn more about atypical and young-onset dementias.
​
April 2024 Meeting of the Advisory Council on Alzheimer’s Research, Care, and Services
Watch Katie's presentation, Love, Loss & Resilience: A Caregiver Perspective on the Impact of a Young-Onset Dementia Diagnosis, at the April 30, 2024 meeting of the National Alzheimer's Project Act (NAPA) Advisory Council Meeting.
​
Alector - Lived Experience Presentation
Watch a highlight of Katie's lived experience presentation at Alector where she explains the Care Plan Trifecta and how it can help families navigate life after a diagnosis.
Alzheimer's Foundation of America: Educational Webinar Series Katie was honored to present the Caregiver Trifecta, an innovative person-centered care planning approach that incorporates the person with the diagnosis, their care partners, and their community as the anchor for each element of care. Hear how this approach to care planning guides professional and family caregivers to build a plan that reflects values, goals of care, personhood, and dignity at every stage of life lived with dementia.
​
Alzheimer's Foundation of America: Women & Alzheimer's: The Empowerment Forum Katie was honored to speak at the 2024 AFA Women & Alzheimer's Empowerment Forum in New York City on the Caregiver Panel (beginning at 1:33 on recording timeline) to share her personal experience as an FTD and Alzheimer's caregiver and how it has impacted her identity as a woman, wife and daughter.
​
ALZ Talks: Becoming An Empowered Caregiver - Katie Brandt joins caregivers Freddye James and Judith Susan Rocha for an Alzheimer's Association webinar that focuses on diverse experiences of family caregivers of loved ones living with dementia. Led by Anna Sampley, Alzheimer's Association Senior Associate Director of Care & Support, this webinar provides insight, emotional connection and practical tools for caregivers at every stage of caregiving.
​
Alzheimer's Foundation of America: Educating America Tour Katie was honored to present The Caregiver Trifecta: Empowering Families to Plan for Personhood, Dignity and Connection at Every Stage of Care as a part of the Boston stop of AFA's national educational tour.
​
WCVB Channel 5: 5 for Good - Katie was interviewed for a spotlight on resources for caregivers ahead of her presentation at the Alzheimer's Foundation of America Boston stop of the Educating America Tour.
2023
Article:
Developments in understanding early onset Alzheimer's disease
Reference: Griffin P, Apostolova L, Dickerson BC, Rabinovici G, Salloway S, Brandt K, Masdeu J, Hammers D, Raghuram S, Hall S, Carrillo MC. Developments in understanding early onset Alzheimer's disease. Alzheimer’s Dementia. 2023 Nov;19 Suppl 9(Suppl 9):S126-S131. doi: 10.1002/alz.13353. Epub 2023 Jun 30. PMID: 37390354; PMCID: PMC10756918.
Being Patient: Live Talk - Katie Brandt and Dr. Brad Dickerson: Understanding Frontotemporal Dementia. In an interview with Deborah Kahn, Editor in Chief of Being Patient, Katie and Dr. Dickerson discuss how FTD is different from Alzheimer's and how it can impact families.
Article:
Promoting Healthy Aging: Public Health as a Leader for Reducing Dementia Risk
Reference: Jackson EMJ, O'Brien K, McGuire LC, Baumgart M, Gore J, Brandt K, Levey AI, Lamont H. Promoting Healthy Aging: Public Health as a Leader for Reducing Dementia Risk. Public Policy Aging Rep. 2023 Jul 15;33(2):92-95. doi: 10.1093/ppar/prad011. PMID: 37736523; PMCID: PMC10512795.
2022
MassBio – The Massachusetts Biotech Council features the Brandt family story of love and loss after her husband’s battle with the rare disease, Frontotemporal Degeneration, in the educational campaign, Cures for the Commonwealth.
AFTD - The Association for Frontotemporal Degeneration spotlight’s Katie’s interview on the Ask a Matchmaker podcast to discuss dating and romantic partnerships while caregiving and navigating the experience of grief and loss.
Book Chapter:
What If It's Not Alzheimer's: A Caregiver's Guide to Dementia
Reference: Dickerson, B., Quimby, M., Brandt, K., & Wong, B. (2022). As the Symptoms Progress: Understanding the Stages of Disease in What if It's Not Alzheimer's?: A Caregiver's Guide to Dementia (pp. 129 - 135). Lanham, MD: Prometheus Books.
Congressionally Directed Medical Research Program: Katie Brandt: A Caregiver and Advocate's Story.
2021
Book Chapter:
Frontotemporal Dementia
Reference: Dickerson, B., Quimby, M., Brandt, K., Lucente, D. & Wong, B. (2021). Frontotemporal Dementia. In Neuropsychiatry and Behavioral Neurology Principles and Practice (pp. 599 - 617). New York, NY: McGraw Hill.
2020
MassBio – The Massachusetts Biotech Council featured Katie on the MassBio Town Hall: Perspectives of the Caregiver with Paul Kidwell.
​
MassBio – The Massachusetts Biotech Council featured Katie on the cover of the Summer 2020 MassBio Insider Magazine to highlight the 2020 Rare Disease Day event, of which Katie emceed for 5 years.
​
Butler Hospital – The Butler Hospital Memory and Aging Program spotlighted Katie as a featured caregiver in the Summer 2020 issue of Memory Matters.
Butler Hospital – “Katie Brandt Provides 5 Critical Tips for Dementia Caregiving”
​
Book Chapter: The Role of the Speech Language Pathologist in Behavioral Variant Frontotemporal Dementia
Reference: Brandt, K., Dickerson, B. & Quimby, M. (2020). The Role of the Speech Language Pathologist in Behavioral Variant Frontotemporal Dementia. In Primary Progressive Aphasia and Other Frontotemporal Disorders: Diagnosis and Treatment of Associated Cognitive-Communication Disorders (pp. 135-156). San Diego, CA: Plural Publishing.
2019
AFTD – The Association for Frontotemporal Degeneration announces Katie’s position as Co-Chair of the National Alzheimer’s Project Act (NAPA) Advisory Council for Alzheimer’s Research, Care and Services with Alan Levy, MD of Emory University.
Article:
Diagnostic evaluation and monitoring of patients with posterior cortical atrophy
Reference: Wong B, Lucente DE, MacLean J, Padmanabhan J, Quimby M, Brandt KD, Putcha D, Sherman J, Frosch MP, McGinnis S, Dickerson BC. Diagnostic evaluation and monitoring of patients with posterior cortical atrophy. Neurodegener Dis Manag. 2019 Aug;9(4):217-239. doi: 10.2217/nmt-2018-0052. Epub 2019 Aug 8. PMID: 31392920; PMCID: PMC6949516.
2018
NPR – In an article on Shots Health News from NPR To Manage Dementia Well, Start With the Caregivers Katie Brandt is interviewed about her work with caregivers for loved ones with Frontotemporal Dementia, utilizing the DICE method for non-pharmacological behavior management.
2017
FTD PSA – Katie was proud to partner with AFTD and the Discovery Channel to produce one PSA in a series of PSAs to promote a greater awareness for FTD and related dementias.
Article:
Frontotemporal Degeneration: Explaining the Importance of Differential Diagnosis
Reference: Brandt, K., Dickerson, B., & Pilcher, J. (2017). Frontotemporal Degeneration: Explaining the Importance of Differential Diagnosis. Journal of Aging Life Care, 26(1), 3-8.
2016 & Previous
The Boston Globe – In an article in Globe South written by Paul Kandarian, Katie is interviewed about her inspiration to launch Love Is Out There and spearhead fundraising efforts for The Frontotemporal Disorders Unit at MGH.
​
MassGeneral Magazine – Is a publication from the Massachusetts General Hospital Development Office. Highlights Katie's work to mobilize others and raise money for MGH research.
​
Project Remind – A non-profit dedicated to raising funds for FTD research. Highlights Katie's work in the FTD community.
​
2016 American Academy of Neurology Neuro Film Festival – Runner Up Award: Katie Brandt for “Love is Out There: A Story of Love, Loss, and Resilience in the Face of Frontotemporal Dementia,” a very personal and touching account of the loss of her husband, Mike, to this vicious disease resulting in the hope of raising awareness about this rare disorder to help other families navigate the struggle of caring for a loved one with FTD.
The Boston Globe – Features the Brandt Family and Katie's work raising awareness by sharing her lived experience at the 2015 MassBio Rare Disease Day event.
​
The Brockton Enterprise – Highlights Katie's leadership while hosting the Comedy for a Cause fundraiser at The Alley Theatre in Middleboro, Massachusetts.
​
The Health4Brands & HAVAS Worldwide video This 3 minute video provides highlights of Boston’s 2014 Rare Disease Day event at the Massachusetts State House where Katie was a featured speaker.
​
AFTD Rare Disease Day Insert, Washington Post – March 23, 2013
​
DISORDER: The Rare Disease Film Festival Announces Selected Films –
Katie's film, Love Is Out There, directed by Ghita Benslimane, was one of thirty films selected for screening at the inaugural festival and shown at the Brattle Theater in Cambridge, MA.
