Speaker Educator Advocate
Katie is a trained support group facilitator and has co-facilitated more than 200 caregiver support groups. Katie has had the privilege of working with families through every stage of a life lived with dementia, helping at the time of diagnosis, through the development of person-centered care plans and end-of-life decision making. By incorporating cultural perspectives, values and personalized goals of care, Katie is able to help families plan for dignity and personhood at every stage of dementia.
Katie is committed to empowering family caregivers and professional care providers with education about dementia care that is person-centered, non-pharmacologic and culturally sensitive. Katie draws from evidence-informed curriculum that explains the stages of dementia, describes effective communication strategies and focuses on “feelings first” for the person living with a diagnosis. Katie has provided keynotes, led seminars, developed workshops and planned family caregiver conferences.
Raising her voice as a caregiver and as an advocate for persons living with a diagnosis of dementia is a way that Katie can incorporate the authentic voice of families into curriculums, research protocols and public policy initiatives. By advocating for expanded services to meet the needs of young-onset families and increased funding for Alzheimer’s and related dementia research, Katie is raising awareness, funds and hope that the cure of tomorrow is not so far from the care of today.